Publikace o Rettově syndromu
Rett syndrome in the Czech Republic is an under-diagnosed condition: the expected number of girls and women with Rett syndrome should be around 243 to 534, but only 59 girls and women with the syndrome are registered nationwide (Laboratory for the Study of Mitochondrial Disorders at the 1st Medical Faculty of Charles University and Prague General University Hospital), says Dr. A. Zumrová, Ph.D. of the children’s neurological clinic at the 2nd Medical Faculty of Charles University and Motol University Hospital. Every year, some 6-10 girls are born with Rett syndrome. Many parents remain uninformed regarding the details of this illness and the possibilities for their child’s development ... following text is here

What’s new
In November, we organized an afternoon of art for parents and children in order to make candles and presents. Rosalina the goat is expecting kids. We will gladly accept old bread, best if cut into pieces. We will also accept raw cabbage, apples, and carrots. We were visited by students and trainees from various Prague schools who enrich our program while learning about us. Amu from Spain is staying with us on an internship, and is getting along great with Thea and Filip. Some parents are urgently looking for someone to help watch their children at home – it doesn’t have to be a professional assistant. If you know about someone who would like this kind of job, please let us know; we will be glad to provide you with further information. Last week, we thoroughly cleaned the pool, so now we can go swimming again. The advent season is starting; soon it will be Christmas.